Lack of support Sometimes family ca

Lack of support Sometimes family caregivers experience a lack of support from the patient, for example, if patients do not clearly express their wishes, then carers are unsure about what they should provide:For myself I know that I am doing a good job. But that may stop quickly if he doesn’t talk to me. (f08, partner; ca colon)When patients are dissatisfied, or even recalcitrant, the caregiver experiences this as a lack of appreciation, and thereby as lack of support:I hate it when they [patients] are obstinate. With all that you do for them.(…) That they are not content. (f01, partner; ca lung)From the caregivers’ perspective, dependent behaviour on the part of the patient more than is needed, means a lack of support or appreciation:He says he can manage a bit, but he can’t do [does not do] a thing. He even calls for a glass of water. Really. And he also forgets to take his pills half the time. (f01, partner; ca lung)Some caregivers experience lack of support from family members or others, for example, if there is only attention paid to the patient, or if no one enquires about the problems of the caregiver:The day went by quickly. Visiting, and back again, do this and do that, watch out, and that went on day after day, week after week. And then they ask, how is… [patient]? But they didn’t ask how I was. (f05, partner; ca ovary)They [family] know about it but are somehow afraid to talk about it. When I say: ‘Boy, I’m so tired’ [they answer] ‘Yes, we can imagine.’ (f06, partner; ca urinary bladder)Lack of support from health providers is demonstrated when professional care and/or aids are not available, and continuity of care is not guaranteed, for example:On that day I went straight back to bed, that’s how sick I was, but that’s the problem then. You may get a home helper for that day. But you won’t get some one for the whole day.(…) They come to assist her with AM care and they may return for the evening care, but during the day you can’t get anybody. (f08, partner; ca colon)